GIANLUCA ORLANDINI-FIELD (2003

This memorial website was created in the memory of our precious little boy GianLuca Orlandini-Field who was born in the United Kingdom on March 14th 2003 at 9.34 am, but sadly passed away on May 22nd 2005 at the age of 2 years and 2 months . We will remember him forever and love him for an eternity..

Our precious angel was taken to soon.. Gianluca had Williams Syndrome a rare genetic condition that affects just 1 in 50,000 children he also suffered from a rare heart condition called sub -aortic and pulmonary stenosis which affects only a few children with Williams Syndrome ....
He fell ill suddenley on Sunday May 22nd at 6pm but sadly he was taken by the Angels at 9.45pm...
He was our life and it seems so cruel and unfair that he is not here with us anymore...
Our lasting memory of Gianluca was his big smile and always holding his arms out to us for a big hug..........

We'll see you soon little man for big hugs and kisses...
Love always and for eternity,
Mummy, Daddy Big sis Olivia and Little Brother Massimo
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      xx Mummy,Massimo,Daddy,Gianluca & Olivia xx

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Williams Syndrome is a rare disorder. Like Down's Syndrome it is caused by an abnormality in chromosomes and shows a wide variation in ability from person to person.

Williams People have a unique pattern of emotional, physical and mental strengths and weaknesses. For parents, teachers, and care workers, learning about this pattern can be a key to understanding a Williams person and in helping them achieve their full potential.

It is a non-hereditary syndrome which occurs at random and can effect brain development in varying degrees, combined with some physical effects or physical problems. These range from lack of co-ordination, slight muscle weakness, possible heart defects and occasional kidney damage. Hypercalcaemia - a high calcium level - is often discovered in infancy, and normaldevelopment is generally delayed.

The incidence is approximately 1 in 50,000. The Foundation hears of over 75 cases a year - and this figure is rising as publicity spreads. By 2002 over 1300 cases were known in the UK and similar organisations have now sprung up in the USA, New Zealand, Canada, Australia and most countries in Europe.

The Williams Syndrome Foundation is run for parents by parents. There are no paid fund-raisers and funds go directly to research



                                            Gianluca looking all grown up on his first morning to his nursery, he couldnt walk but tried so hard to stand up for aslong as he could as he loved it...

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           A Child that loses a parent is an orphan,
         A Man who loses his wife is a widower,
       A Woman who loses her husband is a widow,
There is no name for a parent that loses a child
          For there is no word to describe the pain.

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    "Grief isn't a sign of weakness
           Nor a lack of faith
           It is the price of love"


Mummy, Daddy, Olivia & Massimo....

   " My short life had meaning, i had a job to do
      God wanted you to know the meaning
       Of true love so he sent me to you

         "When someone you love becomes a memory,
            that memory becomes a treasure

"life is a gift
thats why we call it the present "

"The Little Ones"

Why God takes the little ones
I swear I'll never know
You had so much life to live
It just wasn't time to go.

For comfort, now, I think of you
With tiny little wings
Up above, in a beautiful place,
listening to angels sing.

You'll never know the pain I feel
The hurt you left behind.
Oh, what I wouldn't give to hold you one more time.

I carried you in my womb,
Then I carried you in my arms
And now, until it no longer beats
I'll carry you in my heart

        A poem written by Betty in memory of Gianluca.....

                   No stain was on the little heart
                   Sin had not entered there,
                   And innocence slept sweetly
                   On that pale white brow so fair,
                   He was too good for this cold earth,
                   Too beautifull to stay.
                   So God's Holy Angels
                   Bore you little one away.

"My Mom is a survivor"

My Mom is a survivor, or so I've heard it said.
But I hear her crying at night when all others are in bed.
I watch her lay awake at night and go to hold her hand.
She doesn't know I'm with her to help her understand.
But like the sands on the beach that never wash away...
I watch over my surviving Mom, who thinks of me each day.
She wears a smile for others...a smile of disguise.
But through Heaven's door I see tears flowing from her eyes.
My Mum tries to cope with death to keep my memory alive.
But anyone who knows her knows it is her way to survive.
As I watch over my surviving Mum...through Heaven's open door,
I try to tell her that angels protect me forever more.
But I know that doesn't help her or ease the burden she bears.
So if you get a chance, go visit her...And show her that you care.
For no matter what she says...no matter what she feels.
My surviving Mum has a broken heart that time won't ever heal...



I HAD CHARITY WRISTBANDS AND KEYRINGS MADE IN MEMORY OF GIANLUCA TO RAISE MONEY AND AWARENESS OF WILLIAMS SYNDROME,
THEY ARE BLUE IN COLOUR AND ARE EMBOSSED WITH THE WORDING
" GIANLUCA WILLIAMS SYNDROME ".
THERE IS NO WRISTBAND FOR THIS SYNDROME SO I DECIDED IT WOULD BE A GREAT THING TO DO IN MEMORY OF MY BEAUTIFUL ANGEL GIANLUCA..
I HAVE SOLD HUNDREDS ALL OVER THE WORLD BY SELLING THEM ON EBAY AND AT ALL MY FUND RAISING EVENTS, IF YOU WISH TO PURCHASE A BAND FROM ME FOR £2.00 PLUS P/P JUST CLICK ON THE LINK ""TO CONTACT OLGA"" AND LEAVE ME A MESSAGE AND I WILL REPLY TO YOU.

Gianluca's little brother
Massimo on his 1st birthday 2007

Gianluca's big sister Olivia with his noddy..
(she's keeping it safe for you sweetie.)

CHARITY EVENTS

We have decided to do something positive and try and raise much needed money for the following cause
*The Birmingham Childrens Hospital Ward 12- The Heart unit.

OCTOBER 24TH 2005
An excellent night!!. With the money raised we were able to buy playstations and tv's for all the poorly children on the heart unit in the Princess Diana Birmingham Childrens hospital. We also bought special play equipment for the Meadow centre, Faulkner road, Solihull, this is a centre which helps children with all degrees of special needs and finally we gave The Williams Syndrome Foundation a cheque which was used to help with more research and also enabled 10 children with williams syndrome to go on an all paid holiday catered for their special needs.
We will continue to raise money in memory of Gianluca as this is a very positive thing to do in his honour.
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SUNDAY 14TH MAY 2006
My old school friend lisa Ward who i have known and been friends with for over 20 years voluntered her lovely other half Paul to do the Knowle Fun Run in memory of Gianluca and help raise some money, Paul did the run and came in with a good time, he did us proud and we managed to raise over £250.00 !
Lisa has told me he is training for next years run!
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SATURDAY 24TH JUNE 2006
We held our 2nd Memorial Charity Ball in honour of Gianluca on the 24th June 2006. It was a fantastic night!! we had a great turn out with over 200 people attending!
I have added the photos from the night onto the gallery as i know so many people want to have a look.
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SUNDAY 6TH AUGUST 2006
we are having a funday in memory of gianluca, this will consist of a variety of events inc a sponsored football match followed by entertainment at our local public house which has kindly donated everything to help us raise money, this im sure is going to be a great day.We raised a £1000.00, it was a great day.

Golf Annual Event
We also have a special Golf day every year at the Haven Pastures Golf Society.
The "Gianluca Trophy" is awarded to the winner.. which I have just found out was won by one of my old friends who I havn't seen for over 12 years and had no idea he was involved in Gianluca's event.. small world..
This is such a wonderful event which also raises money for the Gianluca Fund..which in turn goes toward the Birmingham Childrens hospital..
Every body is welcome to play..

November 17th 2007"The Crystal ball"
(lots of sparkles on this special night!!)
Well what can i say.. this was the best one yet, over 340 people attended and it was amazing, everyone was tuxed up and all the ladies had ballgowns on,everyone really made the extra effort for Gianluca..
We had so many wonderfull prizes donated!! How wonderfull is that! i cant wait to go and put some smiles on little childrens faces already for christmas...
Thankyou everyone who came and showed their support we really appreciate and i know Gianluca will be sending big hugs your way!!

April 11th 2008

Well we have had some amazing news. I recently appeared on Deal or no Deal TV show and even though I didn't win big, an amazing and very very kind person who has remained anonymous has donated £10,000 in memory of Gianluca to the Birmingham Childrens Hospital. This has enabled us to buy 2 heart machines for ward 12 and we have requested that the small amount of money left over be used for the Rainbow Rooms. These are the cool filled bedrooms used when a child has passed away.... If the generous person who donated this money reads this, I just want to say a BIG THANKYOU!! you are very special....x

Many thanks for a great turn out by everybody many thanks, the weather held out for us all which was good... A special thankyou to Pete Parry who makes this happen by organising everything,we really appreciate it...

This was an amazing nite once again and we managed to raise nearly £8000.. we booked the 3 waiters as a special performance this was just amazing!! anybody who doesnt know what this is just type 3 waiters into google and you will see..wow!!!

Well this ball was a very emotional one as are all and we had so many hurdles to overcome and so many people who let you down sadly, i have found it very hard over the last few years and have decided to do something different in 2010 so i will let you know nearer the time...

Well a big thankyou to all my amazing friends who helped us with the arrangements for this years ball we couldnt of done it without you.

I have lots of pictures to upload of the ball and also of Gianluca's little brother giving the Birmingham Childrens Hospital the cheque...